Last week Tess and I headed to Mayo for her yearly check up. To be honest, I’m still amazed and incredibly thankful that we are in this stage of “yearly” check ups.
Our favorite spot in Mayo Clinic is the dermatology waiting room. It’s never busy, and there is never, ever, ever anyone in this little kids corner. We love it here and have spent A LOT of time in this spot over the years. Eating lunch, processing news, finding some happy after a tough appointment.
Tessa never really has a problem making herself comfortable at Mayo.
Her doctors are still so happy and amazed with how she’s doing. She does have cysts that are growing and will need sclerotherapy at some point, but no one is anxious to go through that again just yet. She also has new blebs (exposed blood vessels on her skin) which have bled and changed, so we’re administering a topical medication to hopefully prevent more bleeding and more blebs from forming. Her doctors would also like to have a bone scan the next time we meet as some kids with CLOVES syndrome develop bones that grow at different rates. Due to Tessa’s frequent leg pain, they feel it’s a good idea to monitor her leg bones.
Next up is a visit with genetics in a couple weeks. During Tessa’s surgery they grabbed some tissue for genetic testing, but due to her post-surgical complications we never got around to it. The genetic testing will aid in helping to treat Tessa in the future as more research is done for CLOVES.
So, that’s where we are. Blessed beyond measure for how God has taken care of this little girl and all her various needs. She is so tough, and just told me the other day that she’s happy she’s different and special. She definitely doesn’t always feel that way, but I’m thankful for the moments when she does.💚🍀
