Tough Like Tessa

Tessa had a checkup at Mayo this week.  We haven’t been up there since the fall, and it’s a whole different experience these days thanks to Covid-19.  Entering the building feels like airport security, except with thermometers, days of the week stickers, and 137 questions to answer.  Everyone is required to wear a mask, and the doctors are covered in gear.(Just trying to casually sneak a drink under my mask).

Tessa continues to do remarkably well.  She is active, healthy, and does her very best to keep up with the big kids.  Her ultrasound showed some larger fluid-filled cysts in her malformation that we could treat with sclerotherapy- but we’re always hesitant to do procedures when she is doing so well.  Her doctors aren’t even sure what the best course of action is:  whether it’s better to stay ahead of the growth and treat little bits at a time, or wait until there’s a problem and address the matter when it’s truly necessary.  Each individual with Cloves Syndrome is different and unique, so there’s really no clear answer on the best way to go about treatments.  Her doctors and I decided to wait and see what the summer brings for Tess.  In April one part of her malformation became infected, but thankfully antibiotics were able to clear it.  But if infections in this area happen again, then we will proceed with sclerotherapy.  If she makes it through the summer without any infections or other complications, then we’ll continue to hold off on sclerotherapy. So my prayer is that the summer will be uneventful, and we can continue holding off on procedures for now.  But I trust God for the future, and I’m thankful each day for the active, healthy, and entertaining almost 4 year old that we get to enjoy.

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