We were definitely ready to be rid of the negative temperatures, but none of us were quite ready to say goodbye to all the snow. Things finally warmed back up, we played in the snow for two days, and then it all melted and now we’re playing in muddy puddles. But we’re all secretly hoping Read More
Snow Days
Weekend Recap
The kids have been loving all the water from the melting snow, especially the little creek under their treehouse. It’s actually pretty peaceful listening to that cool, trickling water. Except when it gets drowned out by the sound of 4 wild, rambunctious children. Which happens 99.8% of the time. Saturday morning had us starting our Read More
Rare Disease Day 2021
Yesterday was International Rare Disease Day. We joined the rare disease community in 2016 when Tessa was born, and it’s been quite the journey. Tessa was diagnosed with CLOVES Syndrome when she was 5 months old. Possibly the hardest part of living with a rare disease is the lack of information. Most often, I’m unable Read More
Friday Favorites
Favorite picture: Everyone is looking at the camera AND smiling normally?! It’s a snow day miracle. Favorite kid quote: Max, waking me up by standing creepily at my bedside at 1 am: “Mom, I just remembered that I need to bring some Easter eggs and yarn to school tomorrow. If I don’t I have to Read More


