Yesterday was International Rare Disease Day. We joined the rare disease community in 2016 when Tessa was born, and it’s been quite the journey. Tessa was diagnosed with CLOVES Syndrome when she was 5 months old. Possibly the hardest part of living with a rare disease is the lack of information. Most often, I’m unable Read More
Rare Disease Day 2021
Friday Favorites
Favorite picture: Everyone is looking at the camera AND smiling normally?! It’s a snow day miracle. Favorite kid quote: Max, waking me up by standing creepily at my bedside at 1 am: “Mom, I just remembered that I need to bring some Easter eggs and yarn to school tomorrow. If I don’t I have to Read More
Snow Cream
Sadly, our snow is melting quickly and there doesn’t appear to be any more coming in the foreseeable future. But we certainly had fun with this last round. With all that fresh, fluffy, powdery goodness, we had to make some snow cream. If you happen to still have some snow on the ground, here’s an Read More
What’s Up Wednesday
What we’re eating this week: M-Fish, T-Taco Ring, W-Cheeseburger Casserole, Th-Popcorn chicken, F-Breakfast, S-Pizza What I’m reminiscing about: On this day last year the girls and Ben were headed to the Father-daughter dance at school. I miss things like being allowed in the school and going to fun events. What I’m loving: Hot chocolate bombs Read More
