This Saturday is Rare Disease Day. A day that I hadn’t even thought about until 3 1/2 years ago, when living with a rare disease became a part of our every day life. Our daughter, Tessa, was born with CLOVES Syndrome- a rare overgrowth syndrome that affects about 500 people worldwide. Our journey with a Read More
Rare Disease Day 2020
What’s Up Wednesday
What we’re eating this week: It’s a busy week at our household, so we’re eating all the quick, easy, one dish dinners. What I’m reminiscing about: A few mommas I follow on IG went to Disneyworld and a Disney cruise last week and it was making me reminisce about our Disney trips. They really are Read More
Weekend Recap
Our weekend started with ice skating/ hockey playing in the backyard. While Max and I took on Claire and Ben in hockey, the two little girls sprayed the snow. Or murdered someone.Walking back up to the house from the rink with my little snow bunny in tow. Claire is our animal lover. She loves all Read More
Friday Favorites
Favorite picture: 3 girls enjoying winter. Favorite kid quote: Tessa, at home one day: “It’s just us in this house? Aw, we don’t have any friends.” Favorite clothing item: I received these socks from one of my friends at our favorite things party, and they have now been added to my list of favorite things. Read More
